The ramblings of a human piece of flesh who has a chronic problem with passing out due to Ehlers-Danlos and dysautonomia. On the internet; I get myself into unintentional predicaments that make me quote the great James McNulty of The Wire, "The fuck did I do?"

 

Gonna say this….

but one of the reasons I think that people with dysautonomia or POTS don’t get taken seriously is because it effects women more than men. Like I think it’s 95 percent of women vs 5 percent of men. It wasn’t that long ago that dysautonomia was labeled as neurasthenia

“Women with neurasthenia (for men were not given this diagnosis, by and large) were often confined to their beds, where they would either recover or, eventually, die. And while nobody knew what caused this condition, everyone - doctors and laymen alike - took it seriously.”
potsproblems:

let’s not forget how amazing we all are. we deal with strange things our bodies do that no one else can probably even fathom dealing with day to day, and we do it fabulously. 

potsproblems:

let’s not forget how amazing we all are. we deal with strange things our bodies do that no one else can probably even fathom dealing with day to day, and we do it fabulously. 

this article is truly incredible

kittje:

how to support someone with POTS/Dysautonomia

The dysautonomiac is generally not a ‘morning person’. But it’s NOT their fault and they are NOT lazy!

They are at their worst in the morning. This is often because they haven’t had fluids all night, and people with dysautonomia often dehydrate…

mylifemystorymyhope:

Having a chronic illness means that a “good nap” for me is about 5 hours long. 

chronicspoonie101:

Okay, does anyone else do this or is it just me?

I’ll have good days and bad days with my illness. But on the good days I somehow convince myself that there was never anything wrong with me.

I’ll be like,

"Psshhhh, yeah I’m totally okay. I guess all the doctors were wrong. Haha, jokes on them. I feel fine."

5 minutes later…


*On the floor*

All the time

terryjohnston:

Title: Baring It All.So many fabulous drag queens photographed during Pride Month. I’ve been WERKING it hard and honored to have had numerous queens from RuPaul’s Drag race in front of my camera. Here is one of my favorite images that I took of Gia Gunn during Chicago Pride.Chicago Pride. Shot with a Canon EOS 5D Mark III and EF 70-200mm f/2.8L IS USM lens.

terryjohnston:

Title: Baring It All.

So many fabulous drag queens photographed during Pride Month. I’ve been WERKING it hard and honored to have had numerous queens from RuPaul’s Drag race in front of my camera. Here is one of my favorite images that I took of Gia Gunn during Chicago Pride.

Chicago Pride. Shot with a Canon EOS 5D Mark III and EF 70-200mm f/2.8L IS USM lens.

Eyes doing the wonky pupils thing again

I’ve been assured many times by doctors that I am not stroking out, still don’t like it anyway. It’s one of those weird migraine/dysautonomia symptoms again. Right side of my mouth is numb-ish. Oh well, it will pass like it always does.

alpaca hat!
#selfie #alpaca

Filterzzzzzzzz too cool for u lol

alpaca hat!
#selfie #alpaca

Filterzzzzzzzz too cool for u lol
It’s summer! I’ve got my alpaca hat and it’s time to fucking party!

It’s summer! I’ve got my alpaca hat and it’s time to fucking party!